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Powering Global Rare Disease Data

Co-Producing Care, Accelerating Discovery, and Enabling Insight

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340 Rare Disorders   
126 Patient Groups   
143 Countries   
11 Languages   

Please reach out—whether you’re a patient, caregiver, member of a clinical care team, academic or industry researcher, or part of an advocacy or community organization. We’re here to support you!

Matrix supports registries, personal health records (PHR), patient portals, Phase II–IV clinical trials, post-market surveillance, natural history studies, ePRO/eDiary, surveys and validated instruments, longitudinal outcomes tracking, patient/caregiver engagement tools, eConsent, cohort discovery and feasibility, investigator-initiated trials, remote/virtual visit support, wearable/device/app integrations, medical record upload + tagging/curation, EHR data ingestion (FHIR/CCDA), record retrieval, and multimodal data collection.